End July 2008: Slight double vision, Headaches.
Mid August 2008: Optician, prescribed glasses.
Beginning September 2008: Double vision worsening, more frequent headaches, right eye noticeably not moving.
17th September 2008: GP appointment referred to ophthalmic department.
24th September 2008: Attended out of hours GP service, severe headache with pressure at back of skull.
25th September 2008: Attended ophthalmic Department, Dunfermline. Referred to ward 5, Victoria Hospital. Admitted to ward.
26th September 2008: Two MRI scans. Brain tumour detected, Referred to sick kids, Edinburgh. Admitted to ward.
27th September 2008: Sick Kids, Edinburgh. Blood taken to check hormone level. Discharged from ward.
7th October 2008: CT scan. Sick Kids, Edinburgh.
14th October 2008: Meeting with Dr. Mclellan (neurologist) and Mr. Steers (Neurosurgeon), to discuss treatment. Sick Kids, Edinburgh. Referred to Western General for surgery.
5th November 2008: Consultation, Western General Hospital. Mr. Statham (neurosurgeon). Surgical procedure agreed.
17th – 21st November 2008: Neurosurgery, Western General Hospital. transphenodial de-bulking of clival tumour.
2nd – 3rd December 2008: Emergency ct/mri scan. Meeting with Mr. Statham and Dr. Mclellan. Western General Hospital. Conformation of second Surgery. Tumour re-grown to original size.
11th December 2008: Meeting with Dr. Edgar, Dr. Johnston (Oncologist) and Dr. Mclellan. Decision on how to treat the remainder of the tumour. Sick Kids Edinburgh
12th December 2008: CT scan (lung), Visual field/eye test. Sick Kids Edinburgh.
15th-19th December 2008: Neurosurgery, Western General Hospital. transphenodial de-bulking of clival tumour.
23rd December 2008: Full body scan. Meeting with Dr. Edgar and Dr Mclellan. Radiotherapy agreed.
6th January 2009: Meeting with Dr Edgar and Dr Peoples (Clinical/Radiation Oncologist). Discuss radiotherapy. Sick Kids, Edinburgh.
16th January 2009: Meet radiotherapy team, Melanie Moore, radiotherapy mask made and CT simulator. Western General Hospital, Edinburgh.
24th January 2009: choose wigs, AA Studio’s, Edinburgh.
28th January - 10th March 2009: Radiotherapy session, week days. Western General Hospital Edinburgh. 30 sessions.
28th January 2009: Blood Taken, Metabolic Unit, Western General, CT scan (verification). Radiotherapy Treatment (Start). Western General Hospital, Edinburgh.
9th February 2009: Wig cut and dyed, Charlie miller hairdressing, Edinburgh.
12th February 2009: Consultation, Dr Strachan Metabolic unit, Western General Hospital, Edinburgh.
26th February 2009: Follow up eye exam, Dr. Madill, Opthalmology, DCN Outpatients, Western General.
10th March 2009: Final radiotherapy treatment.
21st May 2009: Consultation, Dr Strachan, Endocrine Dept, Western General.
26th May 2009: Endocrine Dept, Blood test
2nd June 2009: MRI scan, Western General, Edinburgh.
2nd June 2009: Consultation, Dr Edgar, Sick Kids, Edinburgh. Tumour grown.
17th June 2009: Consultation, Dr Edgar, Sick Kids, Edinburgh. M.R.I in 3 months.
25th June 2009: Consultation, Dr Strachan, Metabolic unit, Western General, Edinburgh. Blood test results.
2nd July 2009: Ophthalmic Consultation, Dr. Madill, DCN Outpatients, Western General Hospital.
4th July 2009: Rachael’s 16th Birthday.
16th July 2009: MRI Scan, double vision worsening.
16th July 2009: Oncology consultation, Dr Edgar and Dr Peoples, Sick Kids, Edinburgh. Tumour stable.
1st September 2009: Oncology consultation, Dr Edgar, Sick Kids, Edinburgh.
12th October 2009: MRI Scan, Sick kids, Edinburgh.
15th October 2009: Endocrine, Steroid test, Western General Hospital, Edinburgh.
22nd October 2009: Ophthalmic consultation, Dr Fleck, sick kids, Edinburgh.
3rd November 2009: Oncology consultation, Dr Edgar, sick kids, Edinburgh. Tumour grown.
11th November 2009: Consultation, Western General Hospital. Mr. Statham (neurosurgeon). Craniotomy agreed.
19th November 2009: Oncology Consultation, Dr Edgar, Shona Simon (Clinical Nurse) Sick Kids, Edinburgh.
30th November 2009: A&E, Ward 7, admitted for seizures. Sick Kids, Edinburgh.
1st December 2009: MRI scan, Sick Kids, Edinburgh.
17th December 2009: Consultation, Mr. Statham (neurosurgeon), Dr. Edgar (oncologist) DCN Western General Hospital, Edinburgh. Craniotomy cancelled, Bisphosphonate infusion agreed.
8th January 2010: Kidney Function test, Neurology Consultation and Bisphosphonate infusion. Sick Kids, Edinburgh.
1st February 2010: Bisphosphonate infusion. Sick Kids, Edinburgh.
16th February 2010: Seizure Clinic, Dr Mclellan. Sick Kids, Edinburgh.
22nd February 2010: Bisphosphonate infusion. Sick Kids, Edinburgh.
25th February 2010: Endocrine Consultation, Dr Strachan, Western General, Edinburgh.
8th March 2010: MRI scan, Sick Kids, Edinburgh.
15th March 2010: 24hr EEG video monitoring, Sick Kids, Edinburgh.
15th March 2010: Consultation, Dr. Edgar (Oncologist) and Dr. Mclellan (neurologist), Ward 7 Sick Kids, Edinburgh. Tumour grown, possible malignancy.
17th March 2010: Consultation, Mr. Statham (neurosurgeon) DCN Western General Hospital, Edinburgh. Biopsy agreed.
25th March 2010: Pre admission check, DCN Western General Hospital, Edinburgh.
30th March - 2nd April: 2010: Neurosurgery, DCN Western General Hospital, Edinburgh. Biopsy results - Benign.
9th April 2010: MRI scan, Sick Kids, Edinburgh.
22nd April 2010: Denosumab trial, Pre-assessment. Royal Orthopaedic Hospital, Birmingham.
27th May 2010: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
3rd June 2010: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
10th June 2010: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
24th June 2010: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
28th June 2010: Occupational Therapist, Royal Hospital for Sick Children.
1st July 2010: Endocrine Consultation, Dr Strachan, Western General, Edinburgh.
27th July 2010: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
16th August 2010: MRI scan, Sick Kids, Edinburgh.
19th August 2010: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham. Tumour shrunk.
26th August 2010: Ophthalmic consultation, Dr Fleck, sick kids, Edinburgh.
26th August 2010: Consultation, Dr. Edgar (Oncologist) and Dr. Mclellan (neurologist), sick kids, Edinburgh.
21st September 2010: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
29th September 2010: Neurosurgery Consultation, Mr Statham. Western General Hospital, Edinburgh.
19th October 2010: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
28th October 2010: Neuropsychology consultation. Dr. Ruth Sumpter (Clinical Neuropsychologist), Sick Kids, Edinburgh.
4th November 2010: Neuropsychology consultation. Dr. Ruth Sumpter (Clinical Neuropsychologist), Sick Kids, Edinburgh.
15th November 2010: MRI scan, Sick Kids, Edinburgh.
16th November 2010: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
23rd November 2010: Consultation, Dr. Edgar (Oncologist) and Dr Peoples (Clinical/Radiation Oncologist).. sick kids, Edinburgh. M.R.I results. Tumour Stable.
23rd November2010: Endocrine consultation, Dr. Strachan. Western General Hospital, Edinburgh. Steroid test.
2nd December 2010: Neuropsychology consultation. Dr. Ruth Sumpter (Clinical Neuropsychologist), Sick Kids, Edinburgh.
9th December 2010: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
13th January 2011: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
20th January 2011: Endocrine consultation, Dr. Strachan. Western General Hospital, Edinburgh. Steroid test.
8th February 2011: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
2nd March 2011: Neurosurgery Consultation, Mr Statham. Western General Hospital, Edinburgh.
3rd March 2011: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
14th March 2011: MRI scan, Sick Kids, Edinburgh.
24th March 2011: Ophthalmic consultation, Dr Fleck, sick kids, Edinburgh.
24th March 2011: Oncology consultation, Dr. Edgar. Sick kids, Edinburgh. M.R.I results, Tumour stable.
5th April 2011: Neurology consultation, Dr. McLellan. Sick kids, Edinburgh.
28th April 2011: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
12th May 2011: Endocrine consultation, Dr. Strachan. Western General Hospital, Edinburgh.
2nd June 2011: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
9th June 2011: MRI scan, Sick Kids, Edinburgh. Tumour Stable.
23rd June 2011: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
19th July 2011: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
9th August 2011: Neurology consultation, Dr. McLellan. Sick kids, Edinburgh.
9th August 2011: Oncology consultation, Dr. Edgar. Sick kids, Edinburgh.
17th August 2011: Ophthalmic consultation, Eye Pavilion, Edinburgh
18th August 2011: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
7th September 2011: Neurology Consultation, Dr McLellan and Dr Duncan Western General Hospital, Edinburgh. Transition clinic
8th September 2011: MRI scan, Sick Kids, Edinburgh. Tumour stable
8th September 2011: Endocrine consultation, Dr. Strachan. Western General Hospital, Edinburgh.
20th September 2011: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
13th October 2011: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
15th November 2011: Consultation, specialist epilepsy nurse, Yvonne Leavy. Dept Clinical Neurosciences, Western General Hospital, Edinburgh.
15th November 2011: Steroid Test, Endocrine Dept, Western General Hospital, Edinburgh.
23rd November 2011: Opthalmic consultation. Princess Alexandra Eye Pavilion, Edinburgh.
6th December 2011: MRI scan, Sick Kids, Edinburgh. Tumour Stable.
14th December 2011: Neurology Consultation, Dr McLellan and Dr Duncan Western General Hospital, Edinburgh. Transition clinic
15th December 2011: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
4th January 2012: Neurosurgery Consultation, Mr Statham. Western General Hospital, Edinburgh.
5th January 2012: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
2nd February 2012: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
23rd February 2012: Endocrine consultation, Dr. Strachan. Western General Hospital, Edinburgh.
8th March 2012: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
14th March 2012: MRI scan, Sick Kids, Edinburgh. Opthalmic consultation. Princess Alexandra Eye Pavilion, Edinburgh. Tumour Stable.
27th March 2012: Oncology consultation, Dr. Edgar, Dr. Peoples and Shona Simon. Sick kids, Edinburgh.
29th March 2012: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.
16th April 2012: Neurology Consultation, Dr Duncan Western General Hospital, Edinburgh.
26th April 2012: Denosumab treatment. Royal Orthopaedic Hospital, Birmingham.