Giant Cell Tumour Of The Clivus
My 15 year old daughter, Rachael was diagnosed with Giant cell tumour of the Clivus in September 2008. Due to the rarity of this condition I decided to create this web site.
The purpose of the site was to give others information about this type of tumour.
Information: Giant cell tumours in themselves are not that rare. They normally account for 20% of primary bone tumours. They usually present themselves in long bones, the leg or arm, at the knee or wrist (Osteoclastoma). They are Aggressive tumours which spread locally and mostly tend to be benign.
Unfortunately when they occur in the clivus, they are rare. According to Rachael’s neurosurgeon he could only find 34 reported cases worldwide. Therefore there is little information for anyone out there with this condition. Although we feel there are more unreported cases, hence the web site.
The clivus is the surface of a portion of the occipital and sphenoid bones in the base of the skull. It is surrounded by the neurovascular structures of the brain stem, as well as both internal carotid arteries.
